Our network of families knows what it is like to receive a SMARD diagnosis. There is a mixture of fear, confusion, anger, and many, many questions. If you or a family member has been recently diagnosed with an IGHMBP2 gene mutation, please connect with us. We can likely guide you in the next steps of your journey and connect you with other families who have been through the same thing.

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Phone: 773-751-9010


Address: 6 Exmoor Lane

               Lincolnshire, IL 60069

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smashSMARD is recognized as tax-exempt under section 501(c)3 of the Internal Revenue Code. EIN: 82-5388567

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